Saturday, October 9, 2010

Love can do so much!

Children with Cockayne can do so much given
Proper therapies, and Medical attention.

I want to share with you one of my favorite children who happened to have Cockayne syndrome. Miss Eden was a delight to know and she has amazing parents. Cockayne syndrome does not mean confined to a bed all day...
--These little wonders are capable of
Like riding zebras in the living room!

Eden it was an honor to know you, to love you and we miss you sweet girl!

Friday, October 8, 2010

Arms to Hold!


A family for Julia....??

Waiting on DETAILS!!!

God has shown His unfailing LOVE thorought the story of a little girl with Cockayne Syndrome, who has never known life outside of four walls of a crib.

 I am in awe but not surprised. No,not one little bit.

My God, He is Love. He is Mercy. He is arms, legs, voice of the weak.


Tuesday, October 5, 2010

Waiting and Trusting

"Have you heard anything?"

"Does she have a family yet?"

"What do you think will happen?"

I don't have answers to any of the questions...but I know who does. One mighty saviour, whose plan for Julia was already put into motion before she was born. He formed her inward parts, she is fearfully and wonderfully made. Early on questions swirled in my own head about Julia and her fate but I have had to release and rest it all on Him as we wait on His plan to be revealed.

What does it mean to wait on the Lord? The ability to wait comes from being confident and focused on the nature and character of God. Trusting in who He is and what He is doing. Placing all trust in His wisdom, love, understanding of what is going in our lives, and His timing. His promises all are true, His faithfulness endures forever.

We are called to wait and trust.

Ps 27:14 Wait on the Lord; Be of good courage, and He shall stregthen your heart;
Wait, I say, on the Lord!

Ps 130:5-6: I wait for the Lord, my sould waits, and in His word I do hope.
My soul waits for the Lord
More than those who watch for the morning
Yes, more than those who watch for the morning.

Ps 52:8-9 But I am like a green olive tree in the house of God; I trust in the mercy of God forever and ever.  I will praise You forever, because You have done it, And in the presence of Your saints
I will wait on Your name, for it is good.

Lord, thank you for wrapping Julia up in comfort. I know she is your precious child and though it is so difficult waiting on the outcome of Julia's future I will continue to praise you as I wait...yes wait with confident expectation...on your lovingkindness to rain down.